It’s been a while since I checked in and talked about my pulling. Perseverance though this uphill battle is not easy. Everyday I need to make a conscious effort to resist the urge to pull. Some days are good and I barely pull, while other days it seems I can’t stop. I still hope to be pull free one day, but accept where I am and see this as a process. It’s so engrained in my being that I don’t even know what life is like without pulling. I’ve had short remission periods, but never more than a few months.
I refuse to give up or become complacent. If I didn’t try I’d have way less hair so in a way I’m making progress. My recovery includes acceptance of my current situation and faith that it will change through awareness, commitment, helpful behaviors, following my rules (see below) a positive attitude, balance, mood stabilization, barriers, the John Kender diet, and supplements.
I had given up on the supplements because of some stomach issues which have resolved. I’m going to try my regimen of NAC, inositol, and the John kender diet again. I’ll also resume charting my pulling as that has always helped with my awareness. I’ll be checking in periodically with updates on my current supplements and pulling progress. I’ll use my daily score of 0-10 to rate my pulling. I’m going to post my supplement plan and rating system for anyone looking to follow it. These two tools have helped me most over my 25 years of battling trich.
The John Kender Diet
Basically , it’s a nutritional and skin care approach. First, try not eating sugar, caffeine, and chocolate. Have some dry red wine or uncaffinated tea instead. These should have an effect in about two or three days. Then, avoid peanuts, chickpeas beans, egg yolks, tuna, and waxes. These should have an effect in about 10 days. Take magnesium gluconate, and take borage oil. Use Shampoos with selenium (Selsun) or Nizoral. Keep a food diary to help you track your own particular triggers. Keep your hair and hands clean. Wash your lashes with baby shampoo hot compresses. Watch out for pet fur. Apply fresh cut ginger, or miconazole nitrate cream, or propylene glycol/aloe vera/rubbing alcohol, or eyewash/vinegar. Use Sea Breeze or Band-Aid Anti-Itch gel for emergency hot spot care.
I take NAC (N-acetylcysteine) 3- 600mg capsules of NAC (N-acetylcysteinen) in the morning and 3-600mg capsules in the evening, giving me a total of 3600mg of NAC. Doses between 1200-3600mg may be helpful according to this article.
It is generally agreed that a large dose is needed for inositol to be effective with trich. I worked my way up to 18g per day. I do this by mixing 3 teaspoons or 1 tablespoon of inositol in water 3 times a day. I have found the Jarrow brand powder dissolves best. It is available on amazon for a reasonable price. I mix it with warm water as it dissolves better that way. You can add it to fruit juice or other sweetened drinks. I simply mix the powder with ~3 oz.
#1 Where Bandaides or other barriers whenever possible, if not wearing them use fiddle toy /keep hands below neck and BE AWARE.
#2 Avoid mirrors. Don’ t stand close, do makeup quickly, avoid touch ups or unnecessary glances.
#3 Keep hands off of face. Don’t touch hair or eyes. Use only one finger or utensil if need to itch or touch eye/head and don’t linger. BE AWARE.
#4 Change activity when triggered before pulling begins.
#5 When stressed find way to take a break and relax (at least 1 minute deep breathing break).
Rating my Progress
Good Days 0-3
3 = 10-20
9=too many/couldn’t count